A Touchdown for Ty
Join our team! Fourth Annual Benefit January 24, 2009
First Niemann- Pick Benefit January 2006
HOW THE TEAM STARTED
When Ty was diagnosis's with Niemann-Pick Type C, we were like a deer in headlights wanting to run but where to and why. Then my daughter's friends stated, "Lets do something. This disorder can't keep us down" The idea of a concert put on by children for the Niemann-Pick children evolved. The three of us racked our brain, contacted the Ara Parseghian Medical Research Foundation and with their wonderful help and guidance we worked for 9 months toward the goal of a benefit concert and silent auction. All of the home schooled children, ages 15 to 5, sent hours rehearsing to be ready for the big night. What a great job they did. The concert was great because the kids were great.
Not one of us had any experience in fundraising but somehow due to the generousity of the Las Vegas community we managed to raise $10,000 dollars the first year, 2006. Every cent raised from this event went to the Ara Parseghian Medical Reseach Foundation.
We never even thought about having a second fundraiser when we did the first one but as time passed we knew that the research must continue It couldn't and wouldn't continue without funds. The families are the only source of income for this fatal childhood disorder. We planned the second fundraiser
Now we are working towards the 3rd annual fundraiser for Ty and all the other Niemann-Pick children. Since our first fundraiser we have added more wonderful volunteers. But more are needed.
The website of the Ara Parseghian Medical Reseach Foundation is www.parseghian.org. Please take a look. It is very informative and you will read about other families and thier persistance in raising funds for research.
When Ty was diagnosis's with Niemann-Pick Type C, we were like a deer in headlights wanting to run but where to and why. Then my daughter's friends stated, "Lets do something. This disorder can't keep us down" The idea of a concert put on by children for the Niemann-Pick children evolved. The three of us racked our brain, contacted the Ara Parseghian Medical Research Foundation and with their wonderful help and guidance we worked for 9 months toward the goal of a benefit concert and silent auction. All of the home schooled children, ages 15 to 5, sent hours rehearsing to be ready for the big night. What a great job they did. The concert was great because the kids were great.
Not one of us had any experience in fundraising but somehow due to the generousity of the Las Vegas community we managed to raise $10,000 dollars the first year, 2006. Every cent raised from this event went to the Ara Parseghian Medical Reseach Foundation.
We never even thought about having a second fundraiser when we did the first one but as time passed we knew that the research must continue It couldn't and wouldn't continue without funds. The families are the only source of income for this fatal childhood disorder. We planned the second fundraiser
Now we are working towards the 3rd annual fundraiser for Ty and all the other Niemann-Pick children. Since our first fundraiser we have added more wonderful volunteers. But more are needed.
The website of the Ara Parseghian Medical Reseach Foundation is www.parseghian.org. Please take a look. It is very informative and you will read about other families and thier persistance in raising funds for research.
